Privacy Policy
The D.U.R.A. Study (ClinicalTrials.gov NCT01762085), sponsored by the Association of Extremity Nerve Surgeons (AENS). Last updated: 2026.
This policy explains what information we collect through this website and how we use it. Because our inquiry form may collect health-related details, we encourage you to avoid submitting detailed medical records or highly sensitive health information through the website form. Detailed clinical information is collected during formal screening under the study's approved procedures.
1. Information We Collect
When you submit our contact or referral form, we may collect: your name, email address, phone number, preferred study site, practice or referral information, and any context you choose to share (such as a history of a healed ulcer or neuropathy symptoms). We also collect standard technical information such as browser type and the page you visited.
2. How We Use Information
Your information is used for clinical trial eligibility screening, study communication, and coordination under IRB oversight. We may use it to contact you about scheduling, screening, or study updates. We do not sell your information to third parties, and it is not used for unrelated marketing.
3. How Information Is Handled
Submitted inquiries are received by the D.U.R.A. Study team. Health-related information is handled in accordance with applicable privacy requirements and federal human-subjects research safeguards under the trial's IRB-approved protocol. We recommend that you do not submit detailed medical records through the website form; secure transfer of clinical records is arranged separately when needed.
Note: Specific technical security controls (e.g., encryption in transit) should be confirmed with the study team before relying on any particular security assurance.
4. Your Rights & Withdrawal
You may request access to, correction of, or deletion of the personal information you submit through this site. If you join the study, you may withdraw at any time, for any reason, without penalty to your regular medical care. To exercise any of these rights, contact us using the details below.
5. Contact Us
For any privacy questions or requests, contact the D.U.R.A. Study team: